1 : Informal or formal diagnosis.
36 = Formal Others left this blank
2 : Male or Female
45 = Female 4 = Male
3 : Age range
21 - 25 = Two 26 -35 = Six 36 - 45 = Twenty Four
46 - 55 = Twelve 55+ = Six
4 : Siblings
47 = Yes 3 = No
5 : Anyone else in family diagnosed
18 = Yes 32 = No
6 : Suffer abuse before symptoms
30 = Yes 21 = No
7 : What kind of abuse
17 = Physical 5 = Sexual 21 = Emotional
2 = Surgical 1 = Fall
8 : Childhood illnesses
27 = Chicken Pox 2 = Mononucleosis 10 = Tonsillitis
2 = Whooping Cough 1 = Malnutrition 1 = Cystis
1 = Endometriosis 2 = Scarlet Fever 15 = Mumps
1 = Red Measles 1 = Meningitis 1 = Pink Eye
19 = German Measles 1 = Cold Sores 1 = Yellow Jaundice
1 = Hepatitis A 2 = Thrush 1 = Growing Pains
7 = Ear Infections 3 = Strep Throat 1 = Apnoea
4 = Asthma 4 = Pneumonia 1 = Rosasha
3 = Appendicitis 3 = Anaemia 2 = Scoliosis
1 = ENT Infections 3 = Bronchitis 1 = Seasonal Allergies
1 = Eczema 1 = Beta Thalassaemia 1 - Varicella
9 : Sleepy as a child
33 = Yes 17 = No
10 : Weight range as a child
18 = Underweight 23 = Normal 5 = Overweight 4 = Fluctuating
11 : Allergies
1 = Adhesives 1 = Amoxil 1 = Ampicillin 1 = Apples 2 = ASA
1 = Aspirin 1 = Bactrim 1 = Bananas 1 = Benadryl 1 = Bees
1 = Blue berries 1 = Broccoli 1 = Buscopan 6 = Cats 1 = Ceclor
1 = Ceftin 1 -1 Celebrex 1 = Chemicals 1 = Chicken 1 = Cockroaches
1 = Coconuts 4 = Codeine 1 = Contrast dyes 1 = Corn 1 = Cortisone
1 = Cows 3 = Dermerol 4 = Dogs 11 = Dust 2 = Eggs
2 = Erythromycin 3 = Feathers 2 = Flowers 1 = Food dyes 1 = Fruit
1 = Ginger 3 = Grasses 1 = Green beans 3 = Hayfever 1 = Hornets
1 = Indocid 3 = Iodine 1 = Lactos 1 = Leviquin 1 = Mildew
2 = Milk 1 = Mollusks 1 = Monocryl 3 = Morphine 11 = Mould
1 = Myacin 1 = Narcotics 1 = Oranges 2 = Peanuts 8 = Penicillin
1 = Perfume 7 = Pollen 1= Pork 3 = Ragweed 3 = Seafood
5 = Seasonal 2 = Smoke 1 = Soy 1 = Stemitil 3 = Sulpha
2 = Sulpha drugs 2 = Talwin 2 = Tetracyclene 1 = Tomatoes 3 = Trees
2 = Tree nuts 1 = Tricyclic drugs 1 = Trumpet vines 1 = Tylonol 1 = Ultram
1 = Ultracaria 1 = Vicodin 2 = Wool
12 : Blood disorder
23 = Yes 27 = No
13 : Injection for blood disorder
9 = Yes 4 = No
14 : B12 injection
5 = Yes 45 = No
15 : Learning difficult
36 = Yes 14 = No
16 : Trauma before symptoms
31 = Yes 19 = No
17 : Depression before symptoms
27 = Yes 14 = No 9 = Don't know
18 : Miss school as a child
17 = Yes 26 = No 7 = Don't know
19 : Penmanship difficult
24 = Yes 26 = No
21 : Symptoms before or after diagnosis
Acalculia = 22 Anomia = 27
Auditory verbal memory = 19 Blurry vision = 3
Difficulty inputting, encoding and retrieving information = 22
Difficulty maintining attention = 27 Directional problems = 9
Dyslexic like symptoms = 20 Fogginess = 37
Forgetfulness = 37 Impaired judgement = 19
Pain = 38 Photosensitive = 32
Sleeping problems = 37 Severe headaches = 40
Sound distractions = 29 Visual spatial problems = 3
Word blocking = 28 Word transposition = 28
22 : Medication
41 = Yes 5 = No
Advair = 1 Adipex = 1 Advil = 1
Albuteral = 1 Alodorm = 1 Altace = 2
Aspirin = 1 Atacand = 1 Avinza = 1
Baclofen = 2 Beta blocker = 1 Buspar = 1
Calcium = 1 Celebrex = 1 Celex = 1
Codeine Phosphate = 1 Cyclobenzaprine = 1 Dalmane = 1
Darvocet = 2 Dexedrine = 1 Diazepam = 1
Dicetel = 1 Dihydrocodeine = 1 Dioxygen
Doxepin = 2 Duragesic = 1 Effexor = 8
Efflor = 1 Esterol = 1 Estraderm = 1
Evaril = 1 Fentanyl = 1 Fiorinal = 1
Flexeril = 3 Flonase = 1 Fortis = 1
Fosamax = 1 Gabapentin = 1 H C T Z = 4
H pylori = 1 Hydrocodone = 1 Hyoscyamine = 1
Ibubrofen = 1 Imitrex = 1 Imodium = 1
Inderal = 1 Indocin = 1 Klonipin = 4
Lasic = 1 Lexapro = 1 Librax = 2
Lisinporil = 2 Lomotil = 1 Lopressor = 1
Lovastatin = 1 Macrocrystal = 1 Mepergan = 1
Morphine = 1 Neurotin = 2 Nexium = 1
Nitrofurantoin = 1 Nortriptyline = 3 Norvasc = 3
Oxazapam = 1 Oxycontin = 3 Paxcil = 1
Percocet = 2 Plavix = 1 Potassium = 2
Premarin = 1 Prevacid = 2 Prozac = 7
Ranitidine = 2 Restasis = 1 Restoril = 1
Robaxin = 1 Singulair = 1 Skelaxin = 1
Soma = 1 Synthroid = 2 Thyroxin = 1
Topamax = 2 Topral = 1 Tramadol = 3
Trazadone = 6 Tritace = 1 Tylenol = 2
Ultracet = 3 Ultram = 1 Vicodine = 3
Vioxx = 1 Xanax = 1 Zanaflex = 1
Zantac = 1 Zelnorm = 2 Zestoretic = 1
Zoloft = 4 Zomig = 1 Zyrtec = 1
23 : How much medication
24 : Does medication improve symptoms
11 = Yes 16 = No 22 = Sometimes
Advil = 2 Avinza = 1 Baclofen = 2
Celebrex = 1 Clonipin = 1 Dexedrine = 1
Diazepam = 1 Dihydrocodeine = 1 Doxepin = 2
Effexor = 4 Efflor = 1 Fentanyl = 1
Flexeril = 2 Hydrocodone = 1 Hyoscyamine = 1
Imitrex = 1 Klonopin = 1 Morphine = 1
Neurotin = 2 Nortriptyline = 2 Oxycontin = 1
Percocet = 1 Prozac = 4 Soma = 1
Tramadol = 3 Trazadone = 4 Ultracet = 3
Ultram = 1 Vicodin = 2 Zoloft = 1
Zomig = 1
25 : Would you like to have more medication options
44 = Yes 6 = No
26 : Do you have a good relationship with your doctor
27 = Yes 9 = No 14 = Sometimes
27 : Do you use mechanical aids
13 = Yes 37 = No
28 : Did pregnancy affect symptoms
13 = Yes 2 = No 31 = Not applicable
1 = Don't know 12 = Made symptoms worse 2 = Made
symptoms better
29 : Have you used natural health products
24 = Yes 11 = No
30 : When did you use them
10 = Before 6 = After 8 = Both
31 : What products were used
Avlimil (energy) Biotin
Calcium (leg pain) Co Enzyme Q-10
Digestive enzymes Dong Quai (sleep)
Fish oil (Feel better internally) Flaxseed oil (hair & skin)
Folic acid Glucosamine chondroitin
Kelp (immune system) l-glutamine
Magnesium Melatonin (sleep)
Metamucil Multi vitamin/mineral
Omega 3 - 6 - 9 Probiotic
Salon pas pain patches Valerian (sleep)
Vitamin B6 Vitamin B12
Vitamin C Vitamin D
Vitamin E Vitamin K
Zinc (immune system)
32 : How many consecutive hours sleep do you have
1-2hr = 1 2hr = 2 2hr-3 = 3
3hr = 3 3-4hr = 2 4hr = 2
4-5hr = 1 4-6hr = 1 5hr = 3
5-6hr = 1 6hr = 6 6 - 7 = 1
7hr = 2 8hr = 2 8-10hr = 1
10-12hr = 1 Not sure = 1
33 : Do you use a sleep aid
14 = Yes 11 = No 9 = Sometimes
Ambien = 3 Dong Quai = 1 Doxepin = 2
Elavil = 1 Sominex = 1 Lavender oil = 2
Soma = 1 Sound machine = 1 Traxadone = 5
Valerian = 2 Xanax = 1
34 : Do you have mostly broken sleep
33 = Yes 1 = No
35 : What affects your sleeping patterns
Bloating = 1 Body temperature = 4 Caffine = 1
Cramps = 1 Daily activity = 2 Depression = 1
Exercise = 4 Headaches = 2 Light = 1
Medication = 4 Muscle spasms = 3 Noise = 2
Pain = 20 Palpatations = 2 Room temperature = 2
Stress = 8
36 : Do you have nightmares
16 = Yes 18 = No
37 : How do you feel when you wake up
Angry = 1 Clumsy = 2 Cold = 1
Confused = 2 Disorientated = 9 Dizzy = 2
Exhausted = 15 Frustrated = 1 Headache = 2
Head congested = 1 Irritated easily = 2 Pain = 16
Scared = 1 Sometimes great = 1 Stiff = 13
Swollen = 2 Tired = 12 Weak limbs = 2
Fed up waking up feeling so bad day after day = 2
38 : Do symptoms improve with movements
9 = Yes 6 = No 19 = Sometimes
Depends on how bad muscle spasms are = 1 Depends
on activities the day before = 2
Depends on amount of sleep = 2 Depends on weather = 2
Only if not in a flare = 1 Stiffness goes but not the pain = 2
Stiffness works through but doesn't completly go = 1
39 : How do moods affect your symptoms
Feeling down means less energy = 1 Get mad or scared means more pain = 1
In a good mood means less pain = 1 More stress means worse symptoms = 21
Not much = 2 Not sure they do = 1
Sad means pain = 3
40 : Do you exercise
Don't exercise = 5 Occasionally = 15
Rarely = 6 Regulary = 8
A little helps = 2 Makes it worse = 6
More often helps = 1 Too much makes it worse = 5
41 : Do you do yoga
4 = Yes 31 = No
42 : Do you smoke
13 = Yes 20 = No
43 : Do you drink
3 = Yes 22 = No 9 = Sometimes
44 : Foods
Healthy = 22 Too much junk = 5 Mixture = 6
45 : Do you binge
19 = Yes 15 = No
46 : Foods that affect your symptoms
13 = Yes 19 = No
Alcohol Caffine = 1
Bacon = 1 (gives energy) Carbohydrates = 1
Coke = 1 Cottage cheese = 1
Fiber = 1 Milk = 1
Orange juice = 1 Red meat = 1
Salads = 2 Sugar = 3
Sweets = 2
47 : Have you had physical therapy
18 = Yes 16 = No
48 : How did it affect you
A little bit helps = 2 Hard to tell = 2 Mixed = 2
Pool therapy helped = 1 Made much worse = 10
49 : Have you tried aromatherapy
8 = Yes 26 = No
50 : Which ones used, did they work.
Lavender Oil Eucalyptus Oil Fresh Rosemary
Mint
51 : Do you work
Full time = 10 Part time = 11 Not at all = 13
52 : What kind of work
Admin assistant = 2 Cashier C N A = 1
Computer analyst = 1 H R Manager = 1 House mum = 2
Meat wrapper = 1 Nail technician = 1 Nurse = 4
Receptionist = 1 L P N = 1 Run day care = 2
Stylist = 1 Systems analyst = 1
53 : Does your employer help
Less stressful duties = 2 Limited hours = 2 Not at all = 3
Special equipment = 1 Time off for doctor appointments
1
54 : Does seasons affect symptoms
Best in warm dry weather = 3 Cold = 17 Damp = 5
Heat = 10 Humid = 5 Rain = 10
Storms = 4 Windy = 2
55 : Methods to relieve
Avoid stress = 3 Chiropractor = 1 Dencoerub ice = 1
Diflam gel = 1 Do something positive each day Heat
pads = 7
Hot showers = 5 Hot water bottles = 3 Massage = 7
Meditation = 4 Naps = 6 Pain relief = 4
Positive thinking = 2 Salon pas pain patches = 1 Soak in bath = 9
Sticking to routines = 1 Stretching = 6 Swimming = 1
Take frequent breaks = 7 Tramadol = 1 Walk a little = 2
56 : Does it need to be publicized more
Everyone said yes
57 : Does your doctor validate you
20 = Yes 14 = No
58 : Do you do sports
3 = Yes 32 = No
59 : What do you do to relax
Boating Crafs
Don't be fooled into a miracle cure
Don't deny it
Don't feel guilty if unable to do things
Don't give up
Don't push too hard
Don't think you will get every symptom
Exercise with care
Explain to family and friends
Find a support group
Fishing
Garden Get a good doctor
Learn as much as possible about the condition
Make sure doctor validates your condition
Pace yourself
Read
Remember it is not fatal
Remember it is not in your head
Spend time alone
Stretch
Water therapy
60: Tips and advice
Avoid stress
Get a computer
Faith Good friends
Hobbies
Lie down on heating pads
Listen to happy music
Movies
Nap
Read
Sit in the sun
Soak in the bath
Start an inside herbal garden
Take short walks
Trust your body
Use luggage cart to take heavy things around
Watch funny video